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The Cystinosis Foundation has been serving the Cystinosis community and hosting family conferences in the U.S. and Europe since 1983.


Would you like to participate in the next Cystinosis Clinic at UCSD/ Rady Children's Hospital in San Diego, Ca?


To schedule appointments, patients should call Crystal at 619-543-7800



Delayed-release capsules - oral therapy for vital organs
- learn more -


CYSTARAN™ The treatment of Corneal Crystals in Cystinosis Patients

 -learn more -


         What Is Cystinosis?

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          A Guide for Parents, Patients,
          and Healthcare Professionals: (5 MB PDF)
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Dr. Doris Trauner with the assistance of Jennifer Crowhurst  is conducting a study on Cystinosis patients related to memory and attention function. Patients will be brought to San Diego for two days. Patients will be given the results. Please email Dr. Trauner if you are interested in participating.



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